Symptoms Other Than Pain: Resources


Symptoms Other Than Pain  
 

Resources
Word document
  1. References
  2. Bibliography
  3. Additional Resources
    1. Books and Publications
    2. Media Resources
    3. Web Sites
  4. Additional End-Of-Life Resources

References

  1. Blues, A. G., & Zerwekh, J. V. (1984). Hospice and palliative nursing care. Orlando FL: Grune & Stratton.
  2. Bennett, J. A. (2000). Dehydration: Hazards and Benefits. Geriatr Nurs, 21(2), 84-88.
  3. Musgrave, C. F., Bartal, N., & Opstad, J. (1995). The sensation of thirst in dying patients receiving IV hydration. Journal of Palliative Care, 11(4), 17-21.
  4. Steiner, N., & Bruera, E. (1998). Methods of hydration in palliative care patients. J Palliat Care, 14(2), 6-13.
  5. Dunphy, K., Finlay, I., Rathbone, G., Gilbert, J., & Hicks, F. (1995). Rehydration in palliative and terminal care: if not--why not? [see comments]. Palliat Med, 9(3), 221-228.
  6. Sorrentino, S. A. (1999). Assisting with Patient Care. St. Louis: Mosby.
  7. Lipson, J., Dibble, S., & Minarik, P. (1996). Culture and Nursing Care: A Pocket Guide. San Francisco: USCF Nursing Press.
  8. Iverson, K. V. (1994). Death to dust. Tucson AZ: Galen Press, Ltd.
  9. Dudgeon, D. (2001). Dyspnea, death rattle, and cough. In B. R. Ferrell &N. Coyle (Eds.), Textbook of palliative care (pp. 164-174). New York: Oxford University Press.
  10. Gift, A. G., Plaut, S. M., & Jacox, A. (1986). Psychologic and physiologic factors related to dyspnea in subjects with chronic obstructive pulmonary disease. Heart & Lung, 15, 595-601.
  11. Schiro, J. (1992). Symptom Management and the Hospice Patient. In J. Kornell (Ed.), Pain management and care of the terminal patient (pp. 165-174). Seattle: Washington State Medical Association.
  12. Dean, G. E., & Anderson, P. R. (2001). Fatigue. In B. R. Ferrell &N. Coyle (Eds.), Textbook of Palliative Nursing (pp. 91-100). New York: Oxford University Press.
  13. Littlewood, T. J., Bajetta, E., Nortier, J. W., Vercammen, E., & Rapoport, B. (2001). Effects of epoetin alfa on hematologic parameters and quality of life in cancer patients receiving nonplatinum chemotherapy: results of a randomized, double-blind, placebo-controlled trial. J Clin Oncol, 19(11), 2865-2874.
  14. Foley, R. N., Parfrey, P. S., Morgan, J., Barre, P. E., Campbell, P., Cartier, P., Coyle, D., Fine, A., Handa, P., Kingma, I., Lau, C. Y., Levin, A., Mendelssohn, D., Muirhead, N., Murphy, B., Plante, R. K., Posen, G., & Wells, G. A. (2000). Effect of hemoglobin levels in hemodialysis patients with asymptomatic cardiomyopathy. Kidney Int, 58(3), 1325-1335.
  15. Mann, J. F. (1999). What are the short-term and long-term consequences of anaemia in CRF patients? Nephrol Dial Transplant, 14(Suppl 2), 29-36.
  16. Lundin, A. P., Delano, B. G., & Quinn-Cefaro, R. (1990). Perspectives on the improvement of quality of life with epoetin alfa therapy. Pharmacotherapy, 10(2 ( Pt 2)), 22S-26S.
  17. Niles, R. (2001). The effects of methylphenidate as an adjuvant medication for outpatients with pain due to cancer: a pilot study. Unpublished dissertation, University of Washington, Seattle).
  18. Breitbart, W., Rosenfeld, B., Kaim, M., & Funesti-Esch, J. (2001). A randomized, double-blind, placebo-controlled trial of psychostimulants for the treatment of fatigue in ambulatory patients with human immunodeficiency virus disease. Arch Intern Med, 161(3), 411-420.
  19. Sarhill, N., Walsh, D., Nelson, K. A., Homsi, J., LeGrand, S., & Davis, M. P. (2001). Methylphenidate for fatigue in advanced cancer: a prospective open-label pilot study. Am J Hosp Palliat Care, 18(3), 187-192.
  20. Schwartz, A. L. (1997). Exercise and fatigue patterns of athletic cancer survivors. Medicine & Science in Sports & Exercise, 29, S210.
  21. Schwartz, A. L. (1998). Patterns of exercise and fatigue in physically active cancer survivors. Oncology Nursing Forum, 25, 485-491.
  22. Schwartz, A. L., & Winningham. (1995). Problems related to exercise reported by athletic breast cancer survivors [Abstract]. Oncology Nursing Forum, 22, 351.
  23. Dimeo, F. C., & Tilmann. (1997). Aerobic exercise in the rehabilitation of cancer patients after high dose chemotherapy and autologous peripheral stem cell transplantation. Cancer, 79, 1717-1722.
  24. Johnson, J. B., & Kelly. (1990). A multifaceted rehabilitation program for women with cancer. Oncology Nursing Forum, 17, 691-695.
  25. MacVicar, M. G., & Winningham. (1986). Promoting the functional capacity of cancer patients. Cancer Bulletin, 38, 235-239.
  26. MacVicar, M. G., & Winningham. (1989). Effects of aerobic interval training on cancer patients' functional capacity. Nursing Research, 38, 348-351.
  27. Mock, V., & Burke. (1994). A nursing rehabilitation program for women with breast cancer receiving adjuvant chemotherapy. Oncology Nursing Forum, 21, 899-907.
  28. Mock, V., Dow, K., Meares, C., Grimm, P., Dienemann, J., Haisfield-Wolfe, M., Quitasol, W., Mitchell, S., Chakravarthy, A., & Gage, I. (1997). Effects of exercise on fatigue, physical functioning, and emotional distress during radiation therapy for breast cancer. Oncol Nurs Forum, 24(6), 991-1000.
  29. Winningham, M. L., & Nail. (1994). Fatigue and the cancer experience: The state of the knowledge. Oncology Nursing Forum, 21, 23-26.
  30. Young-McCaughan, S., & Sexton. (1991). A retrospective investigation of the relationship between aerobic exercise and quality of life in women with breast cancer. Oncology Nursing Forum, 18, 751-757.
  31. Schwartz, A. L. (1997). Development of the Cancer Fatigue Scale [Abstract]. Paper presented at the 4th annual American Cancer Society nursing research meeting, Panama City, Panama.
  32. Schwartz, A. L. (1997). Relationship of exercise to fatigue and quality of life in women with breast cancer. [Diss]. Unpublished Dissertation, University of Utah, Salt Lake City.
  33. Fiatarone, M. A. (1995). Fitness and function at the end of life. J Am Geriatr Soc, 43(12), 1439-1440.
  34. Fiatarone, M. A., O'Neill, E. F., Ryan, N. D., Clements, K. M., Solares, G. R., Nelson, M. E., Roberts, S. B., Kehayias, J. J., Lipsitz, L. A., & Evans, W. J. (1994). Exercise training and nutritional supplementation for physical frailty in very elderly people. N Engl J Med, 330(25), 1769-1775.
  35. Morris, J. N., Fiatarone, M., Kiely, D. K., Belleville-Taylor, P., Murphy, K., Littlehale, S., Ooi, W. L., O'Neill, E., & Doyle, N. (1999). Nursing rehabilitation and exercise strategies in the nursing home. J Gerontol A Biol Sci Med Sci, 54(10), M494-500.
  36. Collins, J. J., Byrnes, M. E., Dunkel, I. J., Lapin, J., Nadel, T., Thaler, H. T., Polyak, T., Rapkin, B., & Portenoy, R. K. (2000). The measurement of symptoms in children with cancer. J Pain Symptom Manage, 19(5), 363-377.
  37. Di Lorenzo, C. (2000). Childhood constipation: finally some hard data about hard stools! Journal of Pediatrics, 136(1), 4-7.
  38. Glia, A., Lindberg, G., Nilsson, L. H., Mihocsa, L., & Akerlund, J. E. (1999). Clinical value of symptom assessment in patients with constipation. Dis Colon Rectum, 42(11), 1401-1408; discussion 1408-1410.
  39. Maleki, D., Locke, G. R., 3rd, Camilleri, M., Zinsmeister, A. R., Yawn, B. P., Leibson, C., & Melton, L. J., 3rd. (2000). Gastrointestinal tract symptoms among persons with diabetes mellitus in the community. Arch Intern Med, 160(18), 2808-2816.
  40. Roma, E., Adamidis, D., Nikolara, R., Constantopoulos, A., & Messaritakis, J. (1999). Diet and chronic constipation in children: the role of fiber. J Pediatr Gastroenterol Nutr, 28(2), 169-174.
  41. Stewart, A. L., Teno, J., Patrick, D. L., & Lynn, J. (1999). The concept of quality of life of dying persons in the context of health care. J Pain Symptom Manage, 17(2), 93-108.
  42. Walsh, D., Donnelly, S., & Rybicki, L. (2000). The symptoms of advanced cancer: relationship to age, gender, and performance status in 1,000 patients. Support Care Cancer, 8(3), 175-179.
  43. Wolfe, J., Grier, H. E., Klar, N., Levin, S. B., Ellenbogen, J. M., Salem-Schatz, S., Emanuel, E. J., & Weeks, J. C. (2000). Symptoms and suffering at the end of life in children with cancer. N Engl J Med, 342(5), 326-333.
  44. McMillan, S. C., & Williams, F. A. (1989). Validity and reliability of the Constipation Assessment Scale. Cancer Nurs, 12(3), 183-188.
  45. Economou, D. C. (2001). Bowel management: constipation, diarrhea, obstruction, and ascites. In B. R. Ferrell &N. Coyle (Eds.), Textbook of palliative care (pp. 139-155). New York: Oxford University Press.
  46. Levy, M. H. (1991). Constipation and diarrhea in cancer patients. Cancer Bulletin, 43, 412-422.
  47. Ng, K., & von Gunten, C. F. (1998). Symptoms and attitudes of 100 consecutive patients admitted to an acute hospice/palliative care unit. J Pain Symptom Manage, 16(5), 307-316.
  48. Oliver, D. (1996). The quality of care and symptom control--the effects on the terminal phase of ALS/MND. J Neurol Sci, 139 Suppl, 134-136.
  49. McCorkle, R., & Quint-Benoliel, J. (1983). Symptom distress, current concerns and mood disturbance after diagnosis of life-threatening disease. Soc Sci Med, 17(7), 431-438.
  50. McCorkle, R., Cooley, M., & Shea, J. A user's manual for the symptom distress scale. Yale University School of Nursing.

Bibliography

  1. Curtiss, C. P. (1996). Constipation. In S. L. Groenwald &M. H. Frogge &M. Goodman &C. H. Yarbro (Eds.), Cancer Symptom Management (pp. 484-497). Boston: Jones and Bartlett.
  2. Curtis, J. R., Patrick, D. L., Shannon, S. E., Treece, P. D., Engelberg, R. A., & Rubenfeld, G. D. (2001). The family conference as a focus to improve communication about end-of-life care in the intensive care unit: opportunities for improvement. Crit Care Med, 29(2 Suppl), N26-33.
  3. Curtis, J., Wenrich, M., Carline, J., Shannon, S., Ambrozy, D., & Ramsey, P. (2001). Understanding physicians' skills at providing end-of-life care perspectives of patients, families, and health care workers. J Gen Intern Med, 16(1), 41-49, 68-49.
  4. Dean, G. E., & Anderson, P. R. (2001). Fatigue. In B. R. Ferrell &N. Coyle (Eds.), Textbook of Palliative Nursing (pp. 91-100). New York: Oxford University Press.
  5. Dimeo, F. C., & Tilmann. (1997). Aerobic exercise in the rehabilitation of cancer patients after high dose chemotherapy and autologous peripheral stem cell transplantation. Cancer, 79, 1717-1722.
  6. Dodd, M., Miaskowski, C., & Paul, S. (2001). Symptom clusters and their effect on the functional status of patients with cancer. Oncology Nursing Forum, 28(3), 465-470.
  7. Dudgeon, D. (2001). Dyspnea, death rattle, and cough. In B. R. Ferrell &N. Coyle (Eds.), Textbook of palliative care (pp. 164-174). New York: Oxford University Press.
  8. Economou, D. C. (2001). Bowel management: constipation, diarrhea, obstruction, and ascites. In B. R. Ferrell &N. Coyle (Eds.), Textbook of palliative care (pp. 139-155). New York: Oxford University Press.
  9. Ersek, M., Kraybill, B. M., & Hansberry, J. (1999). Investigating the educational needs of licensed nursing staff and certified nursing assistants in nursing homes regarding end-of-life care. Am J Hosp Palliat Care, 16(4), 573-582.
  10. Escalante, C., Martin, C., Elting, L., Price, K., Manzullo, E., Weiser, M., Harle, T., Cantor, S., & Rubenstein, E. (2000). Identifying risk factors for imminent death in cancer patients with acute dyspnea. Journal of Pain and Symptom Management, 20(5):318-25(5), 318-325.
  11. Esper, P., & Redman, B. (1999). Supportive care, pain management, and quality of life in advanced prostate cancer. Urol Clin North Am, 26(2), 375-389.
  12. Fainsinger, R., Waller, A., Bercovici, M., Bengtson, K., Landman, W., Hosking, M., Nunez-Olarte, J., & deMoissac, D. (2000). A multicentre international study of sedation for uncontrolled symptoms in terminally ill patients. Palliat Med, 14(4), 257-265.
  13. Fainsinger, R., De Moissac, D., Mancini, I., & Oneschuk, D. (2000). Sedation for delirium and other symptoms in terminally ill patients in Edmonton. Journal of Palliative Care, 16(2), 5-10.
  14. Ferrell, B. R., Grant, M., Virani, R., & Marugg, C. (1999). Strengthening Nursing Education to Improve Pain Management at End-of-Life Care.: City of Hope: May Day Pain Resource Center.
  15. Ferrell, B. (2000). Pain management. Clin Geriatr Med, 16(4), 853-874.
  16. Ferrell, B., Virani, R., Grant, M., & Juarez, G. (2000). Analysis of palliative care content in suring textbooks. Journal of Palliative Care, 16(1), 39-47.
  17. Fins, J., & Solomon, M. Z. (2001). Communication in intensive care settings: the challenge of futility disputes. Crit Care Med, 29(2 Suppl), N10-15.
  18. Friesinger, G. n., & Butler, J. (2000). End-of-life care for elderly patients with heart failure. Clin Geriatr Med, 16(3), 663-675.
  19. Gavrin, J., & Chapman, C. (1995). Clinical management of dying patients. Clinical management of dying patients, 163(3), 268-277.
  20. Gibson, M., & Schroder, C. (2001). The many faces of pain for older, dying adults. Am J Hosp Palliat Care, 18(1), 19-25.
  21. Gloth, F. r. (2001). Pain management in older adults: prevention and treatment. J Am Geriatr Soc, 49(2), 188-199.
  22. Goodlin, S., Winzelberg, G., Teno, J., Whedon, M., & Lynn, J. (1998). Death in the hospital. Archives of Internal Medicine, 158(14), 1570-1572.
  23. Grady, C., Anderson, R., & Chase, G. (1998). Fatigue in HIV-infected men receiving investigational interleukin-2. Nursing Research, 47(4), 227-234.
  24. Hann, D., Garovoy, N., Finkelstein, B., Jacobsen, P., Azzarello, L., & Fields, K. (1999). Fatigue and quality of life in breast cancer patients undergoing autologous stem cell transplantation: a longitudinal comparative study. Journal of Pain and Symptom Management, 17(5), 311-319.
  25. Hansen, C. F. (1997). [Care of the dying--palliative expertise in all districts]. Sygeplejersken, 97(15), 6-7.
  26. Harwood, K. V. (1996). Dyspnea. In S. L. Groenwald &M. H. Frogge &M. Goodman &C. H. Yarbro (Eds.), Cancer Symptom Management (pp. 31-41). Boston: Jones and Bartlett.
  27. Hermansson, A., & Ternestedt, B. (2000). What do we know about the dying patient? Awareness as a means to improve palliative care. Medicine and law, 19(2), 335-344.
  28. Hoefler, J. (2000). Making decisions about tube feeding for severely demented patients at the end of life: clinical, legal, and ethical considerations. Death Studies, 24(3), 233-254.
  29. Ingham, J., & Foley, K. (1998). Pain and the barriers to its relief at the end of life: a lesson for improving end of life health care. The Hospice Journal, 13(1-2), 89-100.
  30. Johnson, J. B., & Kelly. (1990). A multifaceted rehabilitation program for women with cancer. Oncology Nursing Forum, 17, 691-695.
  31. Kazanowski, M. (2001). Symptom management in palliative care. In M. Matzo &D. Sherman (Eds.), Palliative care nursing: quality care to the end of life. New York: Springer.
  32. Keay, T., & Schonwetter, R. (2000). The case for hospice care in long-term care environments. Clin Geriatr Med, 16(2), 211-223.
  33. Keen, J. (2000). Re: The use of phenobarbitone in the management of agitation and seizures at the end of life. Journal of Pain and Symptom Management, 19(2), 80-81.
  34. Kemp, C. (2001). Anorexia and cachexia. In B. R. Ferrell &N. Coyle (Eds.), Textbook of palliative nursing (pp. 101-106). New York: Oxford University Press.
  35. Kesten, S. (1997). Pulmonary rehabilitation and surgery for end stage lung disease. Clin Chest Med, 18(2), 173-181.
  36. King, C. R. (2001). Nausea and vomiting. In B. R. Ferrell &N. Coyle (Eds.), Textbook of Palliative Nursing (pp. 107-121). New York: Oxford University Press.
  37. Kuebler, K. K., Englash, N., & Heidrich, D. E. (2001). Delirium, confusion, agitation, and restlessness. In B. R. Ferrell &N. Coyle (Eds.), Textbook of palliative nursing (pp. 290-308). New York: Oxford University Press.
  38. Kutner, J., Kassner, C., & Nowels, D. (2001). Symptom burden at the end of life. hospice providers' perceptions. Journal of Pain and Symptom Management, 21(6), 473-480.
  39. Leland, J. Y., & Schonwetter, R. S. (1997). Advances in hospice care. Clin Geriatr Med, 13(2), 381-401.
  40. Leland, J. (2000). Death and dying: management of patients with end-stage disease. Clin Geriatr Med, 16(4), 875-894.
  41. Luce, J., & Luce, J. (2001). Perspectives on care at the close of life. Management of dyspnea in patients with far-advanced lung disease: "once I lose it, it's kind of hard to catch it... ". Journal� of the American Medical Association, 285(10), 1331-1337.
  42. MacLeod, R. (2001). On reflection: doctors learning to care for people who are dying. Soc Sci Med, 52(11), 1719-1727.
  43. MacVicar, M. G., & Winningham. (1986). Promoting the functional capacity of cancer patients. Cancer Bulletin, 38, 235-239.
  44. MacVicar, M. G., & Winningham. (1989). Effects of aerobic interval training on cancer patients' functional capacity. Nursing Research, 38, 348-351.
  45. Mann, J. F. (1999). What are the short-term and long-term consequences of anaemia in CRF patients? Nephrol Dial Transplant, 14(Suppl 2), 29-36.
  46. Martz, C. H. (1996). Diarrhea. In S. L. Groenwald &M. H. Frogge &M. Goodman &C. H. Yarbro (Eds.), Cancer Symptom Management (pp. 498-520). Boston: Jones and Bartlett.
  47. Matzo, M., Balkstra, C., & Zugcic, M. (2001). Dyspnea near the end of life: An excerpt from the upcoming RNS 11th Annual Conference. Heart & Lung, 30(2), 164-165.
  48. McCallum, D., Byrne, P., & Bruera, E. (2000). How children die in hospital. Journal of Pain and Symptom Management, 20(6), 417-423.
  49. McCorkle, R., Strumpf, N. E., Nuamah, I. F., Adler, D. C., Cooley, M. E., Jepson, C., Lusk, E. J., & Torosian, M. (2000). A specialized home care intervention improves survival among older post-surgical cancer patients. J Am Geriatr Soc, 48(12), 1707-1713.
  50. McMillan, S. C., Tittle, M., Hagan, S., & Laughlin, J. (2000). Management of pain and pain-related symptoms in hospitalized veterans with cancer. Cancer Nurs, 23(5), 327-336.
  51. Mercadante, S., Casuccio, A., & Fulfaro, F. (2000). The course of symptom frequency and intensity in advanced cancer patients followed at home. J Pain Symptom Manage, 20(2), 104-112.
  52. Mock, V., & Burke. (1994). A nursing rehabilitation program for women with breast cancer receiving adjuvant chemotherapy. Oncology Nursing Forum, 21, 899-907.
  53. Mock, V., Dow, K., Meares, C., Grimm, P., Dienemann, J., Haisfield-Wolfe, M., Quitasol, W., Mitchell, S., Chakravarthy, A., & Gage, I. (1997). Effects of exercise on fatigue, physical functioning, and emotional distress during radiation therapy for breast cancer. Oncol Nurs Forum, 24(6), 991-1000.
  54. Mularski, R., Bascom, P., & Osborne, M. (2001). Educational agendas for interdisciplinary end-of-life curricula. Crit Care Med, 29(2 Suppl), N16-23.
  55. Nelson, J., & Danis, M. (2001). End-of-life care in the intensive care unit: where are we now? Crit Care Med, 29(2 Suppl), N2-9.
  56. Nyman, D., & Sprung, C. (2001). End-of-life decision making in the intensive care unit. Intensive Care Medicine, 26(10), 1414-1420.
  57. Pan, C., Morrison, R., Ness, J., Fugh-Berman, A., & Leipzig, R. (2000). Complementary and alternative medicine in the management of pain, dyspnea, and nausea and vomiting near the end of life. A systematic review. Journal of Pain and Symptom Management, 20(5), 374-387.
  58. Poole, P., Veale, A., & Black, P. (1998). The effect of sustained-release morphine on breathlessness and quality of life in severe chronic obstructive pulmonary disease. American journal of respiratory and critical care medicine, 157(6 Pt 1), 1877-1880.
  59. Rhiner, M., & Kedziera, P. (1999). Managing breakthrough cancer pain: a new approach. Home Healthc Nurse, 17(6 suppl), suppl 1-12; quiz 13-15.
  60. Schwartz, A. L. (1997). Exercise and fatigue patterns of athletic cancer survivors. Medicine & Science in Sports & Exercise, 29, S210.
  61. Schwartz, A. L. (1997). Development of the Cancer Fatigue Scale [Abstract]. Paper presented at the 4th annual American Cancer Society nursing research meeting, Panama City, Panama.
  62. Schwartz, A. L. (1997). Relationship of exercise to fatigue and quality of life in women with breast cancer. [Diss]. Unpublished Dissertation, University of Utah, Salt Lake City.
  63. Schwartz, A. L. (1998). Patterns of exercise and fatigue in physically active cancer survivors. Oncology Nursing Forum, 25, 485-491.
  64. Schwartz, A. L. (1998). Reliability and validity of the Schwartz Cancer Fatigue Scale. Oncology Nursing Forum, 25(711-718).
  65. Selwyn, P., & Arnold, R. (1998). From fate to tragedy: the changing meanings of life, death, and AIDS. Annals of Internal Medicine, 129(11), 899-902.
  66. Shotten, L. (2000). Can nurses contribute to better end-of-life care? Nursing Ethics, 7(2), 134-140.
  67. Singer, P. A., Martin, D., & Kelner, M. (1999). Quality end-of-life care: patients' perspectives. Journal� of the American Medical Association, 281(2), 163-189 comment in 116:1488.
  68. Steinhauser, K. E., Clipp, E. C., McNeilly, M., Christakis, N. A., McIntyre, L. M., & Tulsky, J. A. (2000). In search of a good death: observations of patients, families, and providers. Ann Intern Med, 132(10), 825-832.
  69. Stirling, L. C., Kurowska, A., & Tookman, A. (1999). The use of phenobarbitone in the management of agitation and seizures at the end of life. J Pain Symptom Manage, 17(5), 363-368.
  70. Swain, M. (2000). Fatigue in chronic disease. Clinical science (London, England : 1979), 99(1), 1-8.
  71. Tait, N. S. (1996). Anorexia-Cachexia Syndrome. In S. L. Groenwald &M. H. Frogge &M. Goodman &C. H. Yarbro (Eds.), Cancer Symptom Management (pp. 171-196). Boston: Jones and Bartlett.
  72. Travis, S., Loving, G., McClanahan, L., & Bernard, M. (2001). Hospitalization patterns and palliation in the last year of life among residents in long-term care. Gerontologist, 41(2), 153-160.
  73. Vranckx, P., & Van Cleemput, J. (1998). Prognostic assessment of end-stage cardiac failure. Acta Cardiol, 53(2), 121-159.
  74. Wein, S. (2000). Sedation in the imminently dying patient. Oncology (Huntingt), 14, 585-592; discussion 592, 597-588, 601. Review.
  75. Weissman, D. E. (1997). Consultation in palliative medicine. Arch Intern Med, 157(7), 733-737.
  76. Wetter, T., Stiasny, K., Winkelmann, J., Buhlinger, A., Brandenburg, U., T, P., Medori, R., Rubin, M., Oertel, W., & Trenkwalder, C. (1999). A randomized controlled study of pergolide in patients with restless legs syndrome. Neurology, 52(5), 944-950.
  77. Wickham, R. (1996). Nausea and Vomiting. In S. L. Groenwald &M. H. Frogge &M. Goodman &C. H. Yarbro (Eds.), Cancer Symptom Management (pp. 218-251). Boston: Jones and Bartlett.
  78. Winningham, M. L., & Nail. (1994). Fatigue and the cancer experience: The state of the knowledge. Oncology Nursing Forum, 21, 23-26.
  79. Winningham, M. L. (1996). Fatigue. In S. L. Groenwald &M. H. Frogge &M. Goodman &C. H. Yarbro (Eds.), Cancer Symptom Management (pp. 42-58). Boston: Jones and Bartlett.
  80. Wolfe, J., Grier, H. E., Klar, N., Levin, S. B., Ellenbogen, J. M., Salem-Schatz, S., Emanuel, E. J., & Weeks, J. C. (2000). Symptoms and suffering at the end of life in children with cancer. N Engl J Med, 342(5), 326-333.
  81. Wu, A. W., Fink, N. E., Cagney, K. A., Bass, E. B., Rubin, H. R., Meyer, K. B., Sadler, J. H., & Powe, N. R. (2001). Developing a health-related quality-of-life measure for end-stage renal disease: The CHOICE Health Experience Questionnaire. Am J Kidney Dis, 37(1), 11-21.
  82. Yellen, S. B., & Dyonzak, J. V. (1996). Sleep Distrubances. In S. L. Groenwald &M. H. Frogge &M. Goodman &C. H. Yarbro (Eds.), Cancer Symptom Management (pp. 151-168). Boston: Jones and Bartlett.

Additional Resources

American Association of Colleges of Nursing (AACN)
One Dupont Circle, NW, Suite 530
Washington, DC 20036
Phone: (202) 463-6930
Fax: (202) 785-8320

AACN Education Center: Peaceful Death: Recommended Competencies and Curricular Guidelines for End-of-Life Nursing Care, http://www.aacn.nche.edu/education/deathfin.htm

End-of-Life Nursing Education Consortium (ELNEC) Project Advancing End-of-Life Nursing Care, http://www.aacn.nche.edu/elnec/index.htm

The Robert Wood Johnson Foundation
The Robert Wood Johnson Foundation
Route 1 and College Road East
PO Box 2316
Princeton, NJ 08543-2316
Phone: (609) 452-8701
E-mail: mail@rwjf.org
Web Site: http://www.rwjf.org/main.html

Last Acts: A national coalition to improve care and caring at the End-of-Life.
Web Site: http://www.lastacts.org

American Cancer Society
Phone: 1-800-ACS-2345
Web Site: http://www.cancer.org/index.html

Duke University, Divinity School
Duke Institute on Care at the End of Life
023 New Divinity Building
Duke Divinity School, Durham, NC 27708
Phone: (919) 660-3553
Fax: (919) 660-3544
E-mail: iceol@duke.edu
Web Site: http://www.iceol.duke.edu

The Family Care Research Program (FCRP) is a collaborative, interdisciplinary effort of faculty from the Michigan State University Colleges of Nursing and Human Medicine and the Department of Family Practice.� Web Site: http://www.healthteam.msu.edu/fcrp/default.htm

Growth House Inc.
Phone: 415-255-9045; E-mail: info@growthhouse.org; Web Site: http://www.growthhouse.org

Hospice Foundation of America
Hospice Foundation of America
2001 S St. NW Suite 300
Washington DC 20009
Phone: 1-800-854-3402; Fax: (202) 638-5312; E-mail: hfa@hospicefoundation.org
Web Site: http://www.hospicefoundation.org

National Hospice and Palliative Care Organization
1700 Diagonal Road, Suite 300
Alexandria, VA 22314
Phone: (703) 243-5900 and (800) 658-8898; Web Site: http://www.nhpco.org�

The Carolinas Center for Hospice and End of Life Care
P.O. Box 4449
Cary, NC 27619-4449
Phone: (919) 677-4100; Toll-free: (800) 662-8859; FAX: (919) 677-4199;E-mail: hfc@hospice-nc-sc.org;
Web Site: http://www.carolinasendoflifecare.org/hospice�

Partners Against Pain
Purdue Pharma L.P. http://www.purduepharma.com
100 Connecticut Avenue
Norwalk, CT 06856
Phone: (1) 203 853 0123
Fax: (1) 203 838 1576
Web Site: http://www.partnersagainstpain.com

S.C. Collaborative on End-of-Life Care (at the S.C. Health Alliance)
South Carolina Health Alliance
Post Office Box 6009
West Columbia, S.C. 29171-6009
Phone: (803) 796-3080; Fax: (803) 796-2938; E-mail: email@scha.org
Web Site: http://www.scha.org;
Web Site: http://www.carolinasendoflifecare.org

Books and Publications

Vernon's Goodbye: A Journey of Faith and Hope

  • ABOUT THIS SERIES As medical advances keep people alive longer, a movement is growing to improve care at the end of life. Many Americans want to die at home, not in a hospital. Vernon Nantz was one of them. Hoping that others might benefit from his experience, Vernon agreed to a request by Observer reporter Karen Garloch and photographer Jeff Siner to spend time with him and his family during the last months of his life. Garloch and Siner spent four months on the project. These articles are based on personal observations as well as interviews with Vernon, his wife, JoAnn, their family members and friends, his doctors, hospice nurses and social worker. Reach Garloch at 358-5078 or send e-mail to kgarloch@charlotteobserver.com

DAY ONE Lessons for the living from one man's choice about dying
DAY TWO Songs of thanks and praise
DAY THREE Increasing pain, declining health
DAY FOUR Vernon, now bedridden and sinking, is briefly his old, playful self
DAY FIVE The vigil, the end, the consolation
Web Site: http://www.charlotte.com/observer/special/goodbye/

  • Byock, Ira, Dying Well: Peace and Possibilities at the End of Life. Riverhead Books.

  • Frank, Arthur, The Wounded Storyteller: Body, Illness and Ethics. University of Chicago Press.

  • Lattanzi-Licht, Marcia., Mahoney, John J., and Miller, Galen W., The Hospice Choice: In Pursuit of a Peaceful Death. Fireside.

Media Resources

The Doctor Is In

An award-winning public television series has the medical information you need. Whether you're dealing with a recent diagnosis, in need of general advice to help friends and family understand, or looking for educational support material, THE DOCTOR IS IN videotape series provides useful information on coping with chronic illness and disease. There are more than 60 programs available.

Children Die, Too
Living Fully Until Death
Living Wills
Saying Good-Bye
Alternative Medicine
Healing Arts
http://www.dartmouth.edu/~drisin/index.shtml

On Our Own Terms: Moyers on Dying
Funding for this landmark PBS series and the companion outreach campaign is provided by The Robert Wood Johnson Foundation; The Fetzer Institute; The Nathan Cummings Foundation; The Kohlberg Foundation, Inc.; The Laurance S. Rockefeller Fund; The John D. and Catherine T. MacArthur Foundation; and Mutual of America Life Insurance Company. This site offers lots of tools for the ON OUR OWN TERMS outreach campaign. The ON OUR OWN TERMS companion Web site, offers a broad variety of resources on end-of-life care.� Web Site: http://www.thirteen.org/onourownterms

 

Web Sites

http://dying.miningco.com/health/dying/mbody.htm (Death and Dying with Trudy Weathersby. Your Guide to One of Over 700 Sites)

 

©2001 D.J. Wilkie & TNEEL Investigators